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My son and I have a rare genetic skin disorder called Epidermolysis Bullosa Simplex, (yes, you read that right.) I've pretty much outgrown it and had blissfully ignored the condition for most of my 20s. That reprieve could only last so long I guess, as it came roaring back into my life with the birth of my sweet Logan a year and a half at ago. Since then I've been torn. Sometimes I feel it's not that big of a deal really, especially if I don't act like it is. It's not all of L after all, just a small part. Sometimes his skin looks really good, and he doesn't need us to dwell on it anyway. But then the fifth person at Kroger asks me what's wrong with my kid, he's 18 months and still not walking, he accidentally tears off another scab and bleeds on my shirt, Gabe and I hold him down night after night to break his blisters as he cries out in pain and I think, "This IS a big deal, how am I supposed to deal with it?" If you google this disorder,(I know I would,) you'll find a lot of technical medical jargon, some tough-to look-at pictures, and if you're lucky, a few inspiring Mommy blogs. That last one is what I had searched for for over a year, someone I could relate to. In these discoveries, I came across a blog that has changed my outlook on being Logan's mom and my attitude about how I'd like to live my life from here on out. Courtney Roth is the mother of a two year old boy named Tripp, who has a very severe type of EB. Tripp and his mother deal with more pain on a daily basis than most people deal with in a lifetime of skinned knees. You might then assume that her blog would be depressing and sad, and in a way, it is. I've become very attached to a little boy who is very sick. But in many other ways, it's not. Courtney deals with incredible circumstances with amazing amounts of grace, positivity, faith, a good sense of humor, and an unwavering love and devotion to her baby. I cannot possibly sit and feel sorry for myself when she and many other mothers are living fully, even as they know what is inevitable for their children. Tripp is not doing too well, and I encourage you to follow Courtney's blog or befriend her on FB, letting her know, as she did for me, that she is not alone.

124 Comments

  • Courtney is the epitome of the word ….Mom. There really aren’t enough words to describe what she does for Tripp in a day and how she has changed the idea of “hope” and “appreciation for what we have today.” There has never been another Mother that I have known or even heard of in my life time that could compare to her love, dedication and cross she has to bear for her son – Tripp is truly an angel here on earth – and if you look at her blog – it will only take you minute to see why when you watch him, read her words and see the incredible amount of people that follow their story.

    Wendy Cartozzo commented on Sep 09 11 at 12:50 pm Reply
  • I read Courtney’s blog throughout the week. She is such a strong person. She really shows what an unconditional motherly love is supposed to be like. Tripp may not be exactly like other kids, he may not be able to do things other kids do but that doesn’t matter because instead of cherishing the first time he does something, she cherishes EVERY time he does something.

    Megan commented on Sep 09 11 at 1:53 pm Reply
  • God knew who Tripp’s mom needed to be. He chose Courtney because he knew she was prepared for this journey. What a testimony of faith.
    Prayers to this family, as they care for, and raise Tripp to know God continues to lead them.

    Denise Borell commented on Sep 09 11 at 2:35 pm Reply
  • Courtney is the most beautiful example of a mother’s unconditional love that I have ever known. She has devoted her everyday to her beautiful son Tripp. As she spends countless hours rocking her son she never complains, she embraces and cherishes every single moment. She is his comfort and joy and he his hers. She has opened herself up to all of us to give us a glimpse of her and Tripp so that we may all learn compassion and love. Her courage and faith are an inspiration to so many of us. Her devotion and love are no doubt changing the world.

    Christie Zink commented on Sep 09 11 at 2:37 pm Reply
  • Courtney and Tripp are an inspiration to us all! They show God love and power everyday in their lives! Please everyone keep them in your thoughts and prayers! They are amazing!

    Krissy commented on Sep 09 11 at 2:59 pm Reply
  • Courtney is an amazing Mom! She is truly an inspiration to a whole community!

    Carla commented on Sep 09 11 at 3:07 pm Reply
  • This is so beautifully written! I believe as a mother no matter what our kids circumstances are we should stick together and support each other to no ends! You and EVERY single other woman out their who has a child with special needs are the most inspiring to me! A child has our utmost love even before we hear that first heartbeat and I can not even imagine the rough times y’all go through! I want to say thank you!Keep your head up and love,live,and laugh like their is no tomorrow!

    Elizabeth commented on Sep 09 11 at 4:02 pm Reply
  • I have a two year old as well! I couldnt imagine having to go through what Courtney goes through with her little man! She seems to be so strong for her son, i feel as though i’d break down everyday if i was her! She is truely a phenomenial mother and definetly deserves acknowledment for it. Everyone prays for you Courtney and Tripp! Yall have touched so many hearts and i wish the best for you and your family!!

    Brittany Burleigh commented on Sep 09 11 at 4:06 pm Reply
  • Courtney you have touched so many lives through your blog, what a beautiful testimony…You have shown what unconditional motherly love is supposed to be like….Your love for Tripp radiates all over your face, in your smile, and in your eyes….Thank you for continuing to share Tripp with us and we will continue to lift you both up in prayer…Praying for a Miracle, God is still in the business of performing Miracles….

    Patricia Jones commented on Sep 09 11 at 4:15 pm Reply
  • Courtney and Tripp have become a staple in my families every day prayers. Courntey is such a strong woman and deserves the world!

    Meggie commented on Sep 09 11 at 4:31 pm Reply
  • courtney you are the best mom i know i have a special needs son and it is very hard at times you have been through a lot with little tripp and i feel your pain

    jenniferspinks commented on Sep 09 11 at 4:35 pm Reply
  • Courtney Roth is an angel on earth! She carries a burden that no mother should have to endure yet does it with such love and faith! She is an inspiration to more people than she will ever know! God Bless her, her family and her precious baby boy!

    Theresa Stauter commented on Sep 09 11 at 5:12 pm Reply
  • I try so often to think of Courtney & Tripp when I get frustrated for little things at home, like my son not picking up his toys, or my 2 year old jumping on the bed. Things that I’m sure Courtney could only dream of seeing her son doing. I am humbled and thankful for their story touching SO many and inspiring me to be a more patient and loving mom. I have never known of another mother who has given so very much of herself. God truly picked an angel.

    Tabitha Guidry commented on Sep 09 11 at 5:21 pm Reply
  • For any of you who would like to visit Courtney’s blog, the address was accidentally misstyped. The address is

    http://www.randycourtneytripproth.blogspot.com

    If you haven’t visited, I strongly encourage you to do so. Courtney’s incredible faith and love for her son will inspire you more than you can imagine and you will not be able to help falling in love with Tripp’s infectious smile!

    Brittany commented on Sep 09 11 at 6:14 pm Reply
  • Courtney & Tripp have changed my life. Courtney is a PROVERBS 31 woman of GOD. Watching their videos she is so in love with her child and takes every second of it with grace. She has blessed me beyond measures. She makes me want to be a better mom to my kids. And as far as little Tripp he is GOD’s annointed. This child is, has & will continue to change lives. GOD has Tripp in his embrace and this little warrior for CHRIST is rocking this world. BELIEVING for Tripp’s COMPLETE HEALING.

    Valerie Schexnayder commented on Sep 09 11 at 6:16 pm Reply
  • I am Courtney’s dad and I get to see every day first hand what Courtney does for her son. I also get to witness the effect that she and Tripp have had on our community, our country and even around the world! Not a single day goes by that she doesnt hear from some mother who is having a bad day but instead of getting frustrated or giving up they are inspired to be a better mother. I would like to thank whoever it is who nominated Courtney for this honor and also I would like to correct the web address for her blog. The correct address is http://www.randycourtneytripproth.blogspot.com/ Courtney definitely has my vote!

    Lawton Hotard commented on Sep 09 11 at 6:16 pm Reply
  • I’m a first time mother, and one who stresses easily. Sometimes not the best mix! After coming across Courtney’s blog, I no longer get irritated when my baby cries. I look at him and tell him that I love him! I savor every smile. I consciously appreciate every little thing about my baby boy, and I recognize how truly lucky I am. I have also seen this new attitude spill over into other aspects of my life. My worries seem so small and insignificant now. My life is forever changed thanks to Courtney and Tripp. Much love, and many prayers!

    Shawna commented on Sep 09 11 at 7:40 pm Reply
  • Lawton, I clicked on the address earlier today and it took me to Courtney’s blog. I think who ever posted it must have run out of room, but it will take them there… Your daughter is ONE AMAZING mother and has shown what unconditional motherly love is supposed to be like to so many mothers…She has taught us all to be more patient with our children, whether their 2 or 22…She is so deserving of this award and so much more…I encourage everyone to stop, take the time and go read her blog, and you too will fall in LOVE with both Courtney and Tripp….Praying for a Miracle….

    Patricia Jones commented on Sep 09 11 at 7:43 pm Reply
  • Courtney is the most loving and caring mother. I read and look at her videos, I think is the most adorable little boy. I have come to fall in love with him. I wish I could put my hands in the video and give him a hug. God Bless Tripp and his mom,

    Georgia Caillouet commented on Sep 09 11 at 8:11 pm Reply
  • I do not personally know Courtney, but I know Tripp’s father and family. I wish that I could meet Courtney and Tripp, wave a magic wand and make it all better. I look at my beautiful 2 year old grandson and cannot imagine what precious Tripp and family are going through. Courtney handles herself with so much grace and courage that it makes you want to be just like her. Courtney and Tripp are constantly in my prayers. God bless them and Mary protect them!

    Annie Harmon commented on Sep 09 11 at 11:09 pm Reply
  • Tripp is such a blessing to many people. He is only two years old and has brought more people to love one another, to support one another and to bring families closer together. The most important is that Tripp has brought alot of people to know Jesus. This little man has touched hearts all over the world. His mother Courtney is a living angel made just for Tripp. God has given him the best mommie a little boy could have. Courtney has given inspirations to mothers that want to hug and be closer to there children. I thank a facebook friend Lori Wilson for introducing them to me. A child giving his mother love and fighting the fight. A mother giving love from the heart. Tripp has done more at the age of two than someone that is 90. May God bless each minute they have together.

    Tonya Wilson commented on Sep 09 11 at 11:09 pm Reply
  • Thank you for making us aware of EB and educating us about Junctional Epidermolysis Bullosa. You are truly an amazing advocate for others fighting this terrible disease. You have been an inspiration to so many, God chose the best when he chose you as Tripp’s mommy….You deserve this award, we’re praying for you and your Little Angel Baby…. From Prayers for Tripp………

    Patricia Jones commented on Sep 09 11 at 11:14 pm Reply
  • This blog has been inspirational to me in many ways. As a mother of two boys, it really put our struggles in perspective. To see a mother love her son so unconditionally and through such difficulty has completely changed the way I view my kids and their health. Thank you, Courtney, for sharing so openly and honestly about your experience thus far. Thousands (if not hundreds of thousands!) of people are holding you in the light.

    Danielle commented on Sep 10 11 at 12:34 am Reply
  • Please email. My son has had EB since 1yrs. old. He is now 23. We have seen, and done everything. There is treatment(that works), and ongoing studies at Stanford Univ.Please email, so we can talk. Go to Debra.org for all the latest.God Bless

    Steven Duke commented on Sep 10 11 at 12:39 am Reply
  • I read Courtney’s blog and am constantly amazed by her strength. She deals with more pain and suffering in one minute than most of us do at all. And she does this so graciously – her faith in the Lord sustains her in a mighty way!

    Courtney inspires us all to be better moms, to love our kids and to treasure every moment with them.

    …oh and that Tripp, well, he’s one pretty amazing kid, too.

    Please go and read Courtney’s blog and PRAY for her and sweet Tripp!!

    Laura A commented on Sep 10 11 at 12:42 am Reply
  • Love, Hugs and prayers~~ GPW Decatur GA
    Please look up “Praying for Tripp: on Facebook!! Hope you and his mom can connect~~~

    Shelia Spencer Skinner commented on Sep 10 11 at 12:51 am Reply
  • Please Ignore my previous comment!! I should have read further!! But it is Friday!! TGIF

    Shelia Spencer Skinner commented on Sep 10 11 at 12:53 am Reply
  • What a wonderful Mommy and beautiful child! This little “Drummer Boy” is amazing, just like his Mom!

    Nancy Lucas commented on Sep 10 11 at 12:53 am Reply
  • I have followed Courtney’s blog just for a short period of time. Courtney is not just a wonderful mom, she is a wonderful beautiful woman. If I could be just a little like her then I think I would be a great person. I pray daily for Courtney, her family and friends but mostly for Tripp. I also silently thank Courtney for showing me what kind of person I want to be and realize there are many things that I need to change to be like her, to have her heart full of love, not to feel sorry for myself, to share and not take, to smile, to cry, to feel others pain and not dwell on mine. I am not even close to be that person but I am working toward becoming a better person. Thank you Courtney and Tripp, you are in my thoughts daily.

  • This is the BEST!!!!!! Courtney you deserve ……any good that could ever come your way! your gentle spirit with ‘lil muscle man’ ….drummer boy…..and a precious lil sassy frase!!!:) I Love You and him ; & would (like many others, I’m sure) Love to be there & do anything possible for you guys!
    Til the whole world hears,,,,,,may God give us the miracle of the healing for Tripp,,,,and a cure for such a horrible disease! Lastly; Bless your mom &dad for their love and support!!!!!! In Christ ,,,Kathy in NC~

    Kathy commented on Sep 10 11 at 12:57 am Reply
  • I came across Courtney’s blog by clicking on a link on FB, posted by a friend whose son has SMA (spinal muscular atrophy). She too is an amazing mother. The blog was hard to read and the pictures were even more difficult to look at. I cried for a while imagining what this mother was going through. Cried imagining knowing that just embracing my baby was painful and possibly harmful, when all a mother wants to do to her baby when he is hurt is embrace him…I could not wrap my mind around it. I am the mother of two very healthy little girls, and everyday I remind myself how lucky I am that they are healthy. I wonder about Tripp alot, and Courtney, and I am astounded at how positive and strong she remains in the face of this challenge, because I know if I saw either one of my babies in pain and there was nothing i could do about it, I would not able to maintain hope or faith. I’ve heard people say “God gives special children to special parents.” I’m not religious at all, and I must admit I always thought it was kind of an incredulous statement. But after reading Courtney’s blog and learning about Baby Tripp, I must say I’ve changed my mind.

    Mel commented on Sep 10 11 at 1:47 am Reply
  • God bless this lady and her child. I pray for Him to give her the strength to continue to help her child thrive, and for a cure to be sent to heal them both. She is the world’s best mom.

    Marguerite commented on Sep 10 11 at 1:59 am Reply
  • You are an amazingly strong woman. I pray for you and your son/family. I wish I had half the strength you had. I watched the drum video you post not that long ago and it was absolutely amazing. What a wonderful little boy Tripp is, he is certainly blessed to have a mommy like you. I hope that you and him continue to thrive. God is amazing and he will bring you through. Much love and prayers sent your way!!!

    Jessica E. commented on Sep 10 11 at 2:35 am Reply
  • We recently returned to our little community in Ponchatoula LA after living away for work for 4 years. I amazes me to see the community come together in support of this little famly. Courtney God has a special place for you honey! I pray that our Lord heals this child…I know he is already blessed to have you as his caring family. God Bless each of you and may you have the strength needed to continue.

    Mac & Melanie McKean commented on Sep 10 11 at 2:36 am Reply
  • Some of the strongest people I have ever read about. Keep it up. I just want to reach out and hug.

    Brad N commented on Sep 10 11 at 2:43 am Reply
  • God Bless You and Your Son.
    You are one great Mom !!!!!!!!!!!!!!

    Marlene Delatte commented on Sep 10 11 at 3:24 am Reply
  • You and your family is in our prayers! This child is not only a blessing, but a gift from God that’s gonna guide people and lead them on about life! He will touch so many lives and teach them a lesson as he grows! I can only imagine how you journey in life is b/c I had a Niece that was handicapped (not like your situation) , and she taught MANY people LOTS of things! Tripp was sent to the GREATEST Mom that he could’ve EVER had, as well as my Niece! I know he will get better and I will pray for you guys! PLZ keep us posted! Lots of love

    Danielle Strickland commented on Sep 10 11 at 3:43 am Reply
  • Courtney is so deserving of this award. I don’t even know her, yet I have spent hours marveling over her strength, courage, and love of her son. Everyone needs to read her story to truly appreciate this young mother’s love and devotion.

    Shana commented on Sep 10 11 at 3:47 am Reply
  • Courtney’s dedication to her son is evident in all that she does for Tripp and in her persistence to expand EB awareness. I know her Father, Lawton and through him I feel I know the entire family. What wonderful folks!
    This young woman is prime example of what all mothers should aspire to be like.

    Lynn Cahill commented on Sep 10 11 at 4:27 am Reply
  • Oh my goodness, Logan is so very cute!!! Look at those chubby cheeks and cute smile. I can see the love in your eyes. You and Logan have my love :)

    Sarah commented on Sep 10 11 at 5:32 am Reply
  • I am at a loss for words. My cousin has Cystic Fibrosis (CF), which is a terminal disease. I feel very grateful for every day we have with him. Seeing your story and you and your sons courage is overwhelming to me. Please know there are people out there like me who think of you and your son daily and hope for the best for both of you.

    Tonya Johnson commented on Sep 10 11 at 2:37 pm Reply
  • Courtney continues to bless my life with sharing her son’s story. They are truly inspirations to many and that list continues to grow. Their story will bring you to your knees. It will fill your heart with faith and hope. Her videos she has on her blog will make you cry, laugh and cheer her and Tripp on. God bless you Courtney and Tripp!! Thank you for always inspiring me to be a better mother, friend, sister and living my life with a smile. =)

    Erin commented on Sep 10 11 at 5:06 pm Reply
  • Mothers make all the difference in the world. I was diagnoses with psoriasis at the young age of 7. It is a skin disorder which leaves you with red scaly lsesions on your body. It was not easy being a kid with this disease, but my mother was my true ally. Her attitude thowards life made me become the person I am today.
    I know all about the stares and remarks, too. However, your condition is much more than mine. Just keep strong and do not ever doubt that God loves you for who you are.

    Sally commented on Sep 10 11 at 5:37 pm Reply
  • Courtney,
    I just want you to know that your story has inspired me. My family and I will now be praying for your son Tripp DAILY. God is with you always.

    Candice commented on Sep 10 11 at 11:27 pm Reply
  • The most amazing mother in the entire world. She and her baby, Tripp, are angels on this earth in our life time. Never have I ever seen so much love, strength of character, and Christianity demonstrated on a regular basis through daily, moment by moment pain. Courtney walks the walk…God bless she, Tripp, and the rest of the family on their walk in this life.

    Cheryl commented on Sep 10 11 at 11:38 pm Reply
  • Courtney, Even though I don’t know you, you are the definition of strength and love. Tripp is so blessed to have a mother like you. I only hope I can be half the woman you are. God bless you and your family for many more years to come.

    Mary commented on Sep 11 11 at 12:57 am Reply
  • Please feel free to join Prayers for Tripp facebook page: This page was created by Patricia Jones in an effort to reach out to the community, to pray for a special Little Angel Baby, Tripp Roth. We are a community united together in prayer for Tripp.

    Patricia commented on Sep 11 11 at 1:46 am Reply
  • I first learned of Courtney and lil Tripp from my neighbor who know Courtney and her family! As I listened and I could not imagine just how brave and courageous they both are. That night I pulled up their website on my cell and soon I was laying in bed crying like a baby! I could not imagine the grief and pain they both had experienced yet through it all they found strength, hope, and faith. I lost my mom to leukemia after a 4 year battle. I’ve seen pain and I’ve seen the unimaginable.. but I have never seen a child fight through and as hard as Tripp. Courtney reminds me to have faith and strength and I deal with my own grief and pain! God Bless them!

    nicole cook commented on Sep 11 11 at 2:35 am Reply
  • facebook.com/Prayers.for.Tripp

    Patricia commented on Sep 11 11 at 2:38 am Reply
  • i am sorry hunnie i cried when i read this hunnie….The most amazing mother in the entire world. She and her baby, Tripp, are angels on this earth in our life time. Never have I ever seen so much love, strength of character, and Christianity demonstrated on a regular basis through daily, moment by moment pain. Courtney walks the walk…God bless she, Tripp, and the rest of the family on their walk in this life.my niece has Cystic Fibrosis and they only give her to live to 30 she has to take medicine everyday of her life …..and she also has to take breathing treatments and she gets sick a lot and has a tube in her belly and people always ask her whats that …..and she tells me all the time i want to be a normal kid :( and she has to drink milk everyday 3 cans of it ….

    juanita commented on Sep 11 11 at 2:42 am Reply
  • God Bless You!!! Your Amazing!!!

    Lorna Bairnsfather commented on Sep 11 11 at 2:50 am Reply
  • Thank you God that you are able to do such a mighty work through this beauty called Courtney Roth! You have set her feet upon a rock, and you have put a new song in her mouth! A hymn of praise! She has changed my daily life simply by being a mother; running the race You set out for her with endurance. There are absolutely not enough servants like her in our world. Blessing and healing to the Roth family. Glory to God forever and ever. I love that little drummer boy. What a smarty, and when he smiles on his videos, I know our God is delighting in you, Courtney.

    Brigid Davidson commented on Sep 11 11 at 3:29 am Reply
  • As heart breaking as this is, it is also the most loving. I can not begin to imagine what going through this would be like. Courtney is truly an amazing woman with such strong faith. Tripp is amazing in himself with the fight he has on his poor little hands. When I first read the blog I cried. My heart broke for this family. It also broke because I realized all the things I take for granted with my own child ( holding his had, kissing his cheek, taking him to walmart for a new toy, those special moments when he wrapps those little ams around me and tells me he loves me. It broke again to know that Coiurtney will most likely never be able to experience those priceless moments. Knowing their story made me realize that each moment is a gift meant to be opened and enjoyed to the fullest. Sometimes it seems as if life goes to fast for those wonderful gifts but each one is important and should be taken advantage of. Life is fleeting, you never know when it will end. For her to know the end is coming way too soon for a little guy and to do what she has to do to care for him and love him, I could not imagine strength that great. God has laid his hand on her and is giving her the strength that no human could posses alone. i pray for you guys regulary even though I dont know who you are you are most certainly in need of as many prayers as you can get. Mom’s werr programmed to be handled a lot and to somehow find that reserve of faith that was hidden when you think you were out to keep going. You are that mom that found your reserve.

    Natasha commented on Sep 11 11 at 3:44 am Reply
  • I first meet courtney in nursing school. This young lady was a great nurse. I also worked on the geri-physc unit with her. She was wonderful with our patients. Tripp chose the perfect mommy. I think any person who reads courtneys blog has seen her dedication to her son. Courtney has my vote. If two moms could win I think or I should say I know I would vote for courtneys mom.

    Lori M commented on Sep 11 11 at 4:15 am Reply
  • I to have fallen in love with this family through Courtney’s blog. Me and my children always read her blogs, and watch Tripp’s videos (my kids love to watch Tripp play his drums). Courtney is truly a Mom that I look up to. I myself am a mom of four children, and I could not think of a mom (past or present) who is more deserving of this honor. Me and the kids are excited to be a part of Skip for Tripp this October. Best of luck Courtney, and as always our prayers are with you and Tripp.. xoxo

    Beverly commented on Sep 11 11 at 5:29 am Reply
  • Courtney and Tripp’s story is truly an amazing story of a mother’s love and strength for her baby. Makes anyone appreciate how blessed we all can be with loving our children. Thank you, Courtney. Holding you and Tripp in our prayers. :)

    Iris Martinez commented on Sep 11 11 at 5:47 am Reply
  • Courtney you are one for us all to aspire to be like….another great example of the love and strength a mother can posses and give. What a blessing you are and your precious family are to us all. We pray that God continue to give you and your family grace, strength and His love and that a cure be found for Tripp and others that posses such. Thank you for sharing ya’lls story with us all it has made such a deep and devine impact on us all and we are better for it…I have no doubt God is in this and that His love is more than enough, His strength in yours and His wisdom knows no limit. Bless you and Tripp….I thank God for ya’ll and I know we all agree Tripp is one of those people meant to change the world <3

    Kristen Dutsch commented on Sep 11 11 at 12:32 pm Reply
  • You are such an inspiration. God bless you and your big boy :) You have touched my heart today reading and watching all that you do to give Tripp such a wonderful life!

    Valerie commented on Sep 11 11 at 3:53 pm Reply
  • Courtesy is so inspiring. I have to say I am amazed at the way she has handled this journey with her son. Overtime I read her blog, I become more aware how blessed I am and how glorious God can be. Even through the pain little Tripp smiles and keeps going. He is also an inspiration. I hope she wins. She is truly the model of selfless parenting.

    Paige commented on Sep 11 11 at 4:51 pm Reply
  • Courtney : is the absolute example of maternal love and sheer devotion. We wish her support and send prayers for her continued strength. We all love what she represents and it’s hard not to think of all the little moms everywhere sacrificing for their families. As a deaf child . I always think of the doors my own mom opened for me. God Bless Courtney !

    Susie Cambre commented on Sep 11 11 at 5:10 pm Reply
  • Courtney and Tripp Roth will grab your heart and they won’t let go! Courtney is indeed inspirational! All you have to do is read her blog and you will understand. I continue to pray for you Courtney, Tripp and family. I also pray a cure can be found for this horrible condition so that no other children ever suffer like your lil drummer boy. May Tripp’s beat go on and on and on until that happens!

    Susan Dew commented on Sep 11 11 at 6:39 pm Reply
  • I know something of what Courtney is dealing with. My grandson Bryson was born on July 6, 2011, with Junctional Epidermolysis Bullosa. I had never heard of the disease and it was a heartbreakiing journey caring for this wonderful baby who knew nothing but pain in his short life. We lost him on Sept.1st.I pray that his life will prove to have meaning. Maybe the doctors and the hospital will be better prepared the next time such an angel appears. Most of them knew less about the disease than this poor Grammy who knew nothing before his birth.

    helen singleton commented on Sep 11 11 at 9:31 pm Reply
  • Never really been touched by anything like I have the
    story of Courtney and Tripp Roth to be as young as a mother she is and be so loving warm and tender and to care for that baby the way she does she is an angel sent from above he knew who he was giving Tripp to no one else probably would have done as well as she has with her son I commend her with everything I got because of all the mothers that have well children with no problems don’t want anything to do with them or try to push them off on someone else my prayers and my heart and soul are with you both love yall

    Angel commented on Sep 11 11 at 10:53 pm Reply
  • Courtney is the best example of a mother I have ever come accross. All the trials and tribulations she’s overcome, and is still fighting through, and she never fails to see her son through. She deserves this more than ANY other person I can think of!

    Amanda Hall commented on Sep 12 11 at 1:50 am Reply
  • God bless you and your boy

    zuleyka commented on Sep 12 11 at 3:32 am Reply
  • Courtney…..what an amazing woman and mother you are! Your devotion to your son is to be commended. You’re an inspiration to all!!

    c. perez commented on Sep 12 11 at 3:41 am Reply
  • Courtney, you are an inspiration to everyone who reads your blog and watches those precious videos of Tripp. He is truly amazing and is a very talented little drummer. Thank you for taking the time to share your journey and videos with all of us. God bless you and we pray for a miracle healing for Tripp!

    Jennifer Bunnell commented on Sep 12 11 at 4:32 pm Reply
  • Coutney and tripp and her husband, unsure of his name-sorry!, are an inspiration to everyone out there to get back up and keep on fighting no matter what life throws your way. also they help to remind people that no matter how bad you think you have it there is always someone else out there with a greater cross to bear. so chin up guys and keep on smiling, tripp is making a BIG impact in this world for someone so tiny!! best wishes and extra kisses!!

    Jennifier B. Perrilloux commented on Sep 12 11 at 6:04 pm Reply
  • Courtney and Tripp,

    I’m so completely overwhelmed by my emotions, having read about your journey in guiding your son to create such beautiful sweet music. As a mother of 4 boys I wanted to let you know I have never witnessed such a unique way of communicating between a mother and son. As an outsider I could clearly see in your adorable videos that Tripp may not be vocal but he gets his point across, not just by shaking his head either. I am amazed by the pure talent Tripp has especially for one so young who has lost his vision. Wow… He has a much higher purpose on this earth, than the majority of us do, I would like to thank you for allowing me to witness such as I have today, in Tripp and in yourself for it takes courage, pride, love, humility, compassion and faith to share such as you have shared. May God bless your family

    Tiffany commented on Sep 12 11 at 9:14 pm Reply
  • Courtney has been so inspirational to me personally in my journey as a mother. And I see the impact she has on other moms all over the country and world. Her passion, love, grace and strength are constant reminders of the type of mother and person I strive to be. I thank her for sharing her story and her precious baby boy with all of us. We love you little drummer boy Tripp!

    Ashley R commented on Sep 13 11 at 3:20 am Reply
  • Courtney, you are truely most deserving of this recognition. I think I speek for so many, I am finding it very difficult to respond to something so great!! I would just like to thank you for allowing me and my family to be part of something so wonderful. Just read your latest post, thanks for the update! I think I am a Elmo fan!! God Bless you and your Family!! We love you Tripp!!!

    Eddie Fremen commented on Sep 13 11 at 7:38 am Reply
  • Courtney, you have not only inspired mothers but you also have inspired fathers through all of this.. There are no words to describe how much you have taught everyone including my own self. We all love you guys and continue to pray for you all. Your parents (both mom and dad) are the greatest and I can see that you get your strenght and love from them. They raised you to be this great person that you are and they are the ones that are always right by your side… I pray for Tripp’s pain each day and for the doctor’s to use ever God given talent they have to find a cure for EB… Thank you for letting us all into your lives!

    Rachael H. commented on Sep 13 11 at 3:38 pm Reply
  • Courtney will ALWAYS be the Top mom in my heart!
    This young women lives day in and day out to care for her son. She
    is devoted to help finding a cure for EB…she has brought it to so
    many of our attentions that had no clue. Her mom ” Grammy” also needs
    to be top Mom/Grandmother of the planet! Grammy is her right hand and it
    is so amazing the support they give each other. Love always to Tripp we are praying for you lil drummer boy.

    Melissa Rodriguez commented on Sep 13 11 at 3:45 pm Reply
  • I have been following this story since the blog started and Courtney and her family are the most loving and inspirational team I’ve ever heard of. It makes me wonder why people complain so much when they should be thanking God for everything! Go Courtney and trip!

    Jill Sherman commented on Sep 13 11 at 4:39 pm Reply
  • I heard about baby Tripp on Facebook a few months ago and have been following Courtney’s blog ever since. She is a huge inspiration to my family. I have a 3 year old daughter named Payten and everyday when she comes home from pre-school she asks about Tripp. He is one amazing little boy, and very lucky to have the greatest mommy ever. I don’t know what i would do if i were in Courtney’s position. She really is “the” greatest mother ever.

    Amber Guidry commented on Sep 13 11 at 5:52 pm Reply
  • Prayers and love to Courtney and Tripp! No one deserves this more, Courtney is definitely an inspiration and little Tripp is on my heart day and night!

    Brandy commented on Sep 13 11 at 6:04 pm Reply
  • There isn’t a day that goes by that I don’t “check in” on Tripp. I often rewatch the videos that Courtney posts. Tripp has touched my family very deeply and we have never even met he or Courtney. (perhaps one day). We live in Ponchatoula and see the enormous outpouring of love and caring that Tripp has brought to his family and in the community. That baby is amazing because he has an amazing mother. She reminds us every day of many things: faith, courage, trust, love, fear, disappointment, frustration and the grace to handle all of them. I know that God has special plans for Tripp and his mother. May God Bless you and keep you. Keep on keeping on!! What a wonderful example of selfless love. Courtney is already mother of the year in our community. Many kisses to Tripp….what a ham in some of his videos!!! and he is quite the drummer!

    Leslie Fleury commented on Sep 13 11 at 8:12 pm Reply
  • Amazing, lovable, touching, devoted, strong young woman is all of the characteristics of Courtney Roth. I’ve been following her story on her precious son Tripp. It has really made me realize how fortunate I am. Theres not a day that goes by where he does not pop into my head. His story has touched so many lives. God bless Tripp, Courtney, grandparents, doctors, and supporters!!

    Myriad Neil commented on Sep 13 11 at 10:57 pm Reply
  • God Bless You, Courtney & Tripp and your entire family!!! I will say a special prayer for you, “that God will touch Tripp and give him comfort and that he will continue to keep you strong.” I know your Dad, Frances & Olivia. However, I had not heard your story untill recently on FB.
    What an inspiration you are to me. We have been blessed with a healthy, beautiful (adopted) daughter, who is now 4 yrs old. Hearing your story and all you go thru each and every day really puts life in perspective and has reminded me to NOT take this precious gift for granted. I feel guilty for SWEATING THE SMALL STUFF!!!
    Thanks for sharing your story!!!
    Psalm 18 1-2
    I will love thee, O Lord, my strength.
    The Lord is my rock and my fortress, and my deliverer.
    My God, my strength in whom I will trust, my buckler, and the horn of my salvation and my high tower.

    Connie Rise commented on Sep 14 11 at 1:30 am Reply
  • God Bless Courtney and Tripp. May God continue to blow kisses to both of you and wrap you in his loving arms.

    Trish commented on Sep 14 11 at 2:15 am Reply
  • Hands down, the most inspirational woman of our time. Courtney defines unconditional love. She is love. She is strength. She serves. Under the most difficult circumstances she finds the strength to grow in faith rather than rage. I think of her often when going through the most “difficult” chapters of motherhood. I know she makes me and many others better people and mothers. No one deserves peace and happiness more!

    Maheen Ott commented on Sep 14 11 at 3:32 am Reply
  • Courtney**** Hands DOWN!! Is the winner in everyones heart! She has been made to grow up very quickly, and she never complains~ only selflessly gives of herself to her precious angel, Tripp. Tripp is an Angel from God, here to teach us the pain, he too once felt. Tripp’s musical talent and precious personality makes me smile as I watch those videos over and over….our little Drummer Boy…Courtney you ROCK! And Grammy & G-Paw too!

    Mandi commented on Sep 14 11 at 5:33 am Reply
  • I have been following Courtney and Tripp’s story for about a year now. I am totally moved by the magnitude of her devotion and patience. I am a mother of two boys and cannot wrap my mind around what they go through on a daily basis. She and her family are amazing. They continue to push through these physical as well as emotional barricades. Then she still finds time to write a blog, to keep all of her readers informed on their progress. Although I have never met them in person my heart is full of love for this family.

    Molly commented on Sep 14 11 at 2:20 pm Reply
  • Knowing that your precious child will probably not grow to adulthood is so difficult, I know as I lost my young daughter, Angelique, to leukemia in her first year of life. Somehow God does step in and give you strength and Courtney is a symbol of that strength and endless love. We collected over $1,000 in just one hour to help Baby Tripp and others with EB. We wish we could do more BUT prayers are free and lets keep supporting a wonderful, devoted mom and precious lovable BABY TRIPP

    Debby Rosenberger commented on Sep 14 11 at 9:56 pm Reply
  • She is the most amazing mother and women I know. She and Tripp deserve the world!

    Brandy Daniels commented on Sep 14 11 at 11:18 pm Reply
  • Courtney and Tripp have made me realize what is so important in life. I use to take so many things for granted. Tripp has had to fight for his life more in two years then we all may encounter in a lifetime. He is an inspiration to thousands of people….how many of us can say that…not me. I fell in love with this sweet angel the very first night I read Courtney’s blog. I can honestly say the day I met Tripp Roth was an honor of a lifetime. He has changed me to be a better person today. I love Tripp and Courtney…I know they have been put here to inspire so many lives, May God bless this family and give them the strength to continue this fight…to someday find that miracle to cure this precious lil man. With love, Lori

    Lori Hart commented on Sep 15 11 at 2:53 am Reply
  • Courtney deserves this award. I read her blog about a month ago and have been keeping up with her on facebook since then. She gives me strength through her updates. I am in awe daily of the courage that she and her little man have. They are both Saints here on Earth if you ask me.

    Anna commented on Sep 15 11 at 3:16 pm Reply
  • Well Done My Child, Welcome Home
    I know how you feel,
    To be innocent and in pain,
    For the cup to pass and be healed,
    But my blood flowed like rain.

    Fear not my child, for I see,
    The suffering you’re going through,
    Many have now come to see me,
    I still have much work for you to do.

    Your life has turned many souls,
    To my saving, loving grace,
    Many of my children are now whole,
    Through faith, you have run the race.

    Your drummers beat I can hear,
    I’ve heard it once before,
    To my eyes you bring a tear,
    I love you all the more.

    A place with me you have here,
    When on earth you no longer roam,
    Angels trumpets will ring clear,
    Well done my child, welcome home.

    damon buckhalter commented on Sep 15 11 at 4:16 pm Reply
  • Courtney definitely deserves this award! She has changed my life in so many ways without ever meeting her or Tripp. I pray every night for sweet baby Tripp and all of the other children and families that are affected by EB. Courtney has helped me appreciate my children even more and thank God for his many blessing. Courtney and Tripp are two very, very special people who deserve this, more than anyone I have ever known.

    Mary Ann commented on Sep 15 11 at 6:24 pm Reply
  • Courtney my prayers and thoughts are with you, Tripp, and your family. Your story serves as an inspiration not only for mothers, but to anyone who has or is currently taking care of loved ones. I believe that you certainly deserve this award for I know that you are a true angel sent from above. I wish you and your family all the best and a cure for baby Tripp. Our community is in full support of you and your struggle.

    Lauren Marinovich commented on Sep 15 11 at 7:46 pm Reply
  • There is no one who is more deserving of this award than Courtney Roth<3, She is an inspiration to many people. I am amazed at the strength and courage this beautiful mother has. Tripp is also a courageous little fellow, that fights harder than any adult could or would! God bless him and Courtney! She has taught me so much through her blogs with her words of wisdom, she has made me appreciate life so much more! She deserves this, God bless her, Baby Tripp and her wonderful family. I will continue to Pray for them!!

    April Pitre commented on Sep 15 11 at 8:04 pm Reply
  • It is actually in fact a warning, that the spot belongs to Pandaranol and that you will be handicapped if you park there

  • You are a true inspiration. Your love, spirit and determinaton to fight EB will bring strength and comfort to so many people who need help.

    Nancy Sullivan commented on Sep 16 11 at 4:35 pm Reply
  • You are an inspiration to everyone with child who has a child with extreme special needs.

    Kim Dailey commented on Sep 17 11 at 1:36 am Reply
  • I follow Courtney and Tripp on her blog and get inspiration from her daily. Her unfaltering love for her son and dedication is amazing.

    Holly Gruba commented on Sep 20 11 at 2:32 am Reply
  • Courtney is a amazing mom i follow Tripp story on facebook and she is a blessing to all moms out there i vote for her may god bless her and Tripp and there family

    Tabitha Slaughter commented on Sep 20 11 at 5:09 pm Reply
  • What an inspiration!

    Amanda commented on Sep 20 11 at 5:11 pm Reply
  • I’m sure God smiles daily just watching this little family. What a testimony to Him, mothers, and the love of your child.

    Denise Borell commented on Sep 20 11 at 5:44 pm Reply
  • Courtney is an amazing mom….her dedication and love to her son Tripp is wonderful….many moms would not be able to cope with the everyday things that Courtney has to endure. God bless her and her loving family as they help Tripp with his daily living. She so deserves this award…she’s a true inspiration to many!

    Angel Aycock commented on Sep 20 11 at 9:05 pm Reply
  • I don’t personally know Courtney, but as a mother and grandmother I am in totally awe of her strength as a woman and mother. I follow Tripp’s progress on facebook and Courtney’s blog. They have become a small part of our lives as we pray every day. I believe in my heart that Courtney is one of the bravest, strongest, more endearing mother I have ever seen. Tripp couldn’t have asked God for a better mommy.

    Melanie commented on Sep 20 11 at 9:21 pm Reply
  • I am a dedicated reader of Courtney’s blog. Although I’ve never met them, Courtney and Tripp are in my thoughts often and in my prayers daily. I learn to be a better Mother to my two boys by Courtney’s example. Her devotion to Tripp is more than just a Mother’s unconditional love, it is an example of God’s love here on earth. Tripp is so lucky to have Courtney as his Mommy and I feel blessed to “know” them both.

    Melissa Hampton commented on Sep 21 11 at 1:09 am Reply
  • Courtney is just plain and simply the definition of love and strength.
    A purely dedicated mother and an inspiration to all..

    Patricia Schexnaydre commented on Sep 21 11 at 2:09 pm Reply
  • I am simply in awe of Courtney and Tripp.
    I stumbled upon the blog today for the first time and I am amazed and dumbfounded by the little bit I have had the time to read. WOW. Courtney’s faith is simply inspiring. I can’t begin to imagine what she will go on to do later in life with this. I know we will see her somewhere doing more amazing and wonderful things.

    Michelle commented on Sep 21 11 at 3:50 pm Reply
  • praying for your sweet baby boy!

    Julie commented on Sep 22 11 at 5:49 pm Reply
  • Courtney doesn’t know me, but I’ve been following her blog for well over a year. She simply amazes me by her strength, her faith, her devotion to her son and God. As the mother of a special needs son myself, I draw strength from her. I don’t think she could possibly know how many lives the two of them have touched. Tripp for his strength to go on and fight this disease; Courtney for being so brave with him. Courtney, I’ve never been able to post on your blog and haven’t become friends on FB yet, but I hope you’re reading this. You are an example of what every mom should be. You’re brave, strong, beautiful, amazing. The love you have in your heart for your son reminds me of my own for my special son. You really are an inspiration to me and I pray for you every night, along w/ Tripp. I know you know there are people all over the world praying for Tripp’s miracle. I wish there was something I could do for you from GA, but know there simple isn’t a day that goes by that I don’t think of your precious son. Vickie Smith, GA

    Vickie Smith commented on Sep 22 11 at 7:43 pm Reply
  • Courtney is the daughter of a highschool classmate of mine. I sit here in awe and very humbled at this amazing woman and mother. She is beyond special, and I pray that God will bless her and reveal Himself to her everyday as she takes care of sweet little Tripp.

    Sharon Bartolomeo commented on Sep 23 11 at 4:32 am Reply
  • Courtney definitely has my vote!!!! What a courageous young woman and devoted mom!! The strength she has is beyond me. The devotion to her little man is inspiring and uplifting.

    Brenda D. commented on Sep 23 11 at 11:00 am Reply
  • Ms. Courtney is truly a great mom!!! As a child with special needs I know first hand what a devoted mom is. Ms. Courtney is dedicated and loves her son just as all moms do. The courage and love she has is very special and I know she is al deserving of this honor.

    Kristen commented on Sep 23 11 at 11:03 am Reply
  • I have recently been following your blog daily and I must say you both are truly an inspiration. I keep you and Tripp in my prayers everyday!

    Danielle commented on Sep 23 11 at 5:49 pm Reply
  • Courtney is my inspiration…every single day <3

    Tabetha Majesty commented on Sep 24 11 at 7:18 pm Reply
  • Courtney,
    Praying for comfort for you and Tripp!! You are definately a saint and Tripp is an angel from God put here for a purpose!! You deserve this more than anyone in this WORLD!!

    Mandi commented on Sep 24 11 at 10:57 pm Reply
  • I have been following your blog for the last year or so. You are an amazing Mom and I pray for you and Tripp everyday. He is truly a gift of gods and has touched some many lives.

    Robin commented on Sep 26 11 at 1:58 am Reply
  • Inspired by Courtney’s devotion.

    Susan C commented on Sep 26 11 at 3:42 am Reply
  • Courtney, I have been following your story for only a couple of months now, but I consider you and your son to be heroes and an inspiration to us all! Tripp is TRULY an angel sent to this world by God and his story is touching so many lives! I pray for you guys everyday and will continue to do so. Stay strong!!

    Stephanie commented on Sep 27 11 at 2:27 am Reply
  • Courtney, You deserve this nomination more than anyone! You are changing lives with your strength and love, and inspiring us all to live each day to the fullest. I pray for you, your mom, and Tripp daily! Love and hugs to you all!

    Katie commented on Sep 27 11 at 6:16 pm Reply
  • Courtney is an inspiration and a truely amazing mother to little Tripp. I couldn’t think of a more deserving person

    fiona armitage commented on Sep 27 11 at 11:06 pm Reply
  • Courtney is truly a hero mommy. She is a strong mom. I appreciated her for the love and affection she shared with her son Tripp. They are both amazing, they both touched the life of people around the world. To Courtney and Tripp, thank you so much for sharing your life with us. You both touched the our life. Your life story is one of the best story that I read. You are the best and May God love and care abide with you always.

    You deserved this nomination Courtney.

    star commented on Sep 29 11 at 12:58 pm Reply
  • A TRUE HERO!!

    Pamala Stafford commented on Sep 30 11 at 2:50 pm Reply
  • Good luck and many prayers.

    Paula Dupuis commented on Sep 30 11 at 3:35 pm Reply
  • Courtney is an inspiration to the world and Tripp is his own miracle. He has touched lives around the world.

    Tony Guagliardo commented on Oct 03 11 at 5:39 pm Reply
  • Courtney- God Bless your precious son Tripp and you his Mommy.
    You both are in my thoughts and prayers. Love always,

    Julie commented on Oct 04 11 at 2:38 am Reply
  • Courtney deserves this nomination. This young mother of a very I’ll suffering baby boy named Tripp. She has been sharing her like and her most intimate feeling with all of us mostly stranger and in the sake of spreading the information of a very rare disease . This will help her “cause” and rewarding for others taking care of their suffering children . Her faith is unbelievable .

    Judith Archila commented on Oct 04 11 at 3:17 am Reply
  • Courtney,

    I don’t have the words to explain what I see in you.
    Everyone all you need to do is look at all the LOVE !!!!!!!!!!!!

    Marlene Delatte commented on Oct 04 11 at 10:41 pm Reply
  • Courtney is such an inspiration to any mother, parent , friend, neighbor, etc. I have never witnesses so much faith and love as I have with Courtney and her little angel, Tripp. I have had many trials to over come in my personal life, but nothing to compare to what this family goes through everyday. They have really gave me a whole new outlook on life’s situations and just how blessed we are to say “Thank you God” for all we have. If everyone would just take the time to read her blog you would truly leave it with the amount of love that is being shared and shown by her.

    Stephanie Perrin commented on Oct 05 11 at 1:32 pm Reply

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